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Frances Shani Parker posted a video
Hospice Volunteer Respite Care
Hospice volunteer respite care serves an important role. In this video, the caregiver feels guilty about leaving a parent.
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Mar 25, 2015
Frances Shani Parker replied to Greg Schneider's discussion Before I go
"Reading about someone facing his mortality reminds us of how we can, should, and will face our own. And that is good.
Happy endings,
Frances Shan Parker
http://www.francesshaniparker.com/"
Mar 5, 2015
Greg Schneider replied to Frances Shani Parker's discussion Dying and Technology: When is too far or not far enough?
"Frances,
Atul Gawande's book, Being Mortal, Medicine and What Matters in the End, covers this in great detail.  His video on the HCF about this book is quite informative as well.
Happy Holidays!!
Greg"
Dec 8, 2014
Frances Shani Parker replied to Greg Schneider's discussion Should doctors and patients learn to plan humane, happier endings rather than trying to prolong life?
"The whole idea of "winning" a fight against cancer concerned me when I was invited to speak to the Gilda's Club Metro-Detroit Women of Color Cancer Support Group. One of the members had invited me to come speak about hospice, and I wasn't sure how…"
Dec 6, 2014
Frances Shani Parker commented on Greg Schneider's video
"The video is very informative and honest in delivery. I learned early on as a hospice volunteer that the quality of end-of-life care depends on the context in which it is given. Context includes everything and everybody involved. In addition to…"
Sep 18, 2014
Frances Shani Parker commented on Frances Shani Parker's video
"I meant I was wondering why you didn't also play your harp music for the patient who had breast cancer that metastasized to the brain. I know you play music for patients sometimes when you volunteer. You mentioned the two of you didn't speak the…"
Sep 8, 2014
Frances Shani Parker commented on Frances Shani Parker's video
"Greg, was there a particular reason you didn't play your harp music with her?"
Sep 8, 2014
Frances Shani Parker posted a video
Hospice Volunteer Vigil Interview (3:46)
The importance of being with a patient who doesn’t want to die alone is the reason many hospice programs are providing specialized volunteer vigil training. During vigil training, a volunteer is taught how to provide bedside support during the final…
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Sep 2, 2014
Frances Shani Parker replied to Greg Schneider's discussion More Inspections of Medicare Hospice Programs Demanded by New House Bill
"That's a great move, and it's about time!"
Aug 5, 2014
Frances Shani Parker commented on Greg Schneider's video
"Greg, when I first heard about the Alive Inside project last year, I was a little surprised that it was being viewed as such a major discovery. I had been doing that for years, and I knew many other healthcare workers were also aware of the powerful…"
Jul 21, 2014
Frances Shani Parker replied to Greg Schneider's discussion 11 fascinating funeral traditions from around the globe in Cultural Diversity in Hospice
"These examples are very diverse and interesting ways of unfastening from this world. Many people in America are also personalizing their death rituals and making them less traditional. Theme funerals (golf and other sports, hobbies, favorite foods,…"
Jul 20, 2014
Frances Shani Parker commented on Frances Shani Parker's video
"Marijuana is already being used by hospice patients in Colorado. It is ingested orally, such as in cookies or candy. From my discussions on the Internet, many people seem to support it. Several have said they wish their dying loved ones had used…"
Jun 9, 2014
Frances Shani Parker posted a video
Medical Marijuana for Hospice Patients (Video 2:00)
Valley Hospice in Arizona has started the state's first medical marijuana program. Group says it can be beneficial for some patients to try.Frances Shani Parkerhttp://www.francesshaniparker.com/
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Jun 7, 2014
Frances Shani Parker replied to Greg Schneider's discussion Hospice: When It Relieves Caregiver Anxiety, and When It Falls Short
"My experience as a hospice volunteer in nursing homes also revealed hospice limitations. Some nursing home employees had difficulty making a paradigm shift from curative care to non-curative care when that focus was required. Staff turnover was…"
Apr 4, 2014
Frances Shani Parker replied to Frances Shani Parker's discussion Is Hospice Volunteering Ever Fun? What's Your Funny Story?
"Yes, some people do wonder about hospice volunteers, but we "get" it. Thanks for writing. If you think of a funny hospice story, let us know about it."
Mar 31, 2014
Maggie Rogers replied to Frances Shani Parker's discussion Is Hospice Volunteering Ever Fun? What's Your Funny Story?
"I love this photo!
There is a lot of laughter in my hospice office.  Some of it is death related and I quickly learned that many of my friends didn't "get" it.  Those that have volunteered with me do now.  It is rewarding, not always full of laughs,…"
Mar 31, 2014
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Support books $5 cost for patients, families, caregivers, staff

Posted by Janice Willett on August 4, 2020 at 6:07am
 If any individual or organization needs support books for patients, caregivers, families, staff during this time of crisis, "Dying w/o Crying" and "Affairs of the Heart” are reduced to cost ($5 ) on jiwillett.com. Utilized by Pastoral Care of many health facilities including MSKCC and UPMC. For large orders DM for bulk rate. Stay well. Chaplain Janice  (Radio,TV,Media info @ jiwillett.com)
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When Your Massage Client has Dementia

Posted by Irene Smith on January 28, 2019 at 5:45pm


When Your Massage Client Has Dementia  https://medium.com/@everflowing"


Providing massage for dying persons presents multi level challenges to me as a practitioner. One of these special challenges is working with persons experiencing dementia. One of the blog posts that has been archived earlier is titled The Lost Pause. https://medium.com/@everflowing"…

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Comments

  • elizabeth winland November 26, 2009 at 11:18pm
    Fransis I hope you received my comment ,Im having trouble checking if their reaching everyone.Thank you for telling me to remove my number and shall watch your video's and read some of your books . God Bless Liz
  • elizabeth winland November 26, 2009 at 11:08pm
    Frances , thank you for telling me about posting my # . I just came back from watching 2012 and highly recommend it friend. There were many touches of humanity and grace throughout the movie. Sort of like the work you are doing for other's. Blessing's shall come your way, God has a funny way like that. Thank you for all your wonderful caring work you do for the Dying and the sick. Elizabeth.
  • Steve Mattison March 3, 2009 at 10:31am
    Bless you and keep on keepin on!
  • Deanna Cochran February 22, 2009 at 8:45am
    Thank you!
  • Pat February 20, 2009 at 7:34am
    Hi Frances, thank you for your welcome message. This place feels like home. It's really great to connect with others who provide massage therapy for hospice clients. Thanks for the great work you are doing.
  • Greg Schneider April 20, 2008 at 10:35pm
    Hi Frances,

    Welcome to the Hospice Community Forum -- I love your photo -- beautiful. Hope all is well.

    Greg
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Just Published!!
by Rashani Rea & Kathy Douglas

Those who companion suffering daily, such as hospice nurses and volunteers, will surely appreciate this beautiful work. With 62 original art collages by Rashani Réa, five beautiful chapters by Kathy Douglas, and a foreword by Jean Watson, this exquisite book is a peaceful refuge for contemplation, inquiry, reflection and inspiration for those who traverse the joys and sorrows of nursing.

Kathy Douglas, RN, MPH-HA is a nationally recognized nurse leader, filmmaker and entrepreneur. 

Rashani Réa is a prolific artist and musician, a creatrice of sanctuaries and a respected spiritual mentor.

“This is a beloved book and beyond a book. It is an evocative, poetic, ecstatic, and inspirited sacred, experiential calling. A calling to you--YES, YOU.” 

— Jean Watson, PhD, RN, AHN-BC, FAAN, Living Legend (AAN)

“Those who companion suffering daily need to turn inward to metabolize what they have witnessed. This exquisite book, filled with beautiful images and poetic wise words, is the inspiration and support needed to grow a wise heart.” 

— Frank Ostaseski, founder and director of the Metta Institute and author of The Five Invitations: Discovering What Death Can Teach Us About Living Fully

“In this unique time of the COVID-19 pandemic, this book should be considered a tribute to the tremendous courage being displayed by nurses around the world. There is much wisdom conveyed throughout by those who have been there serving others with such grace.” 

— Greg Schneider President, HVA, co-author of The Changing Face of Hospice Volunteering in Hospice and Palliative Care 

Buy Now