Caregiver volunteers serving individuals at the end of their lives require specialized training to serve as a member of a hospice and palliative care team. The purpose of this group is to discuss training requirements and methodologies.
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Does anyone have a check-off list that shows the documentation needed in a volunteer's personnel file that is required by the State? i.e., driver's license copy, insurance copy, HIPAA, etc.???
Read more…This question was asked by HCF member, Ocean Sharp, a volunteer coordinator in Kokomo, Indiana. There are different philosophies on training of volunteers. In my experience, these philosophies are influenced by the nature of the organization (i.e. size, type, staffing), how it is managed and who is responsible for training the volunteer staff. Organizational policies may also dictate training philosophies. That said, the following attempts to explain why I would suggest that none of those…
Read more…The following information came from my continuing education volunteer training, while serving at the Zen Hospice Project in San Francisco. One of the barriers to compassionate interaction with someone whose dying is a fear of saying the wrong thing or not knowing what to say. This information from The Centre for Living with Dying presents some common questions and comments expressed by patients and families coping with illness and grief. Included are examples of suggested responses and…
Read more…Surviving Hospice: A Chaplain's Journey into the Big Business of Dying Plus: How To Find a Trustworthy Hospice
This narrative is an insider’s look into the hijacking of hospice by private equity and professional investors and the subsequent harm to patients, their families, and to the interdisciplinary clinical teams. It was released by a NYC publisher on October 31, 2023. For sale on Amazon.
The author, a hospice chaplain, tells end-of-life stories of her patients who were harmed by financially-motivated policies. This is a book for anyone who is embarking on making a choice about a hospice for their loved one, working chaplains, those in training, and those interested in what dying is like with a hospice who places patients as their primary stakeholders.
Maryclaire's experience working for an owner who sold to a private equity firm helped her to realize that the reputation and viability of hospice is in jeopardy. Her goal is to alert all who love hospice to rid it of professional investors.
— Stacy Juba, author, editor, and award-winning health journalist
"Powerful, beautifully written, and eye-opening, this book spotlights the inner workings of a multi-billion-dollar industry and the effect on patients, families, and hospice staff. The author shares poignant accounts of hospice at its best and worst and the hard-hitting truths she learned on her journey. A must-read for family members exploring hospice care."
— Laura Kukowski, CEO, editor, For-Profit Badger Hospice, LLC
"Maryclaire Torinus speaks with authority, providing this essential handbook for choosing a hospice care team and why that selection really matters."
— Greg Schneider President, HVA, co-author of The Changing Face of Hospice Volunteering in Hospice and Palliative Care
"When I first found out that Maryclaire Torinus was writing this book, I immediately contacted her because in my 25+ years supporting hospice volunteers, I have seen a gradual decline in the quality of care volunteers are permitted to provide the dying and their families. There are a variety of reasons for this that I describe in the Foreward of this book. Maryclaire provides invaluable insights that everyone should know, along with solutions to help others make the right choice in choosing a hospice."
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