If any individual or organization needs support books for patients, caregivers, families, staff during this time of crisis, "Dying w/o Crying" and "Affairs of the Heart” are reduced to cost ($5 ) on jiwillett.com. Utilized by Pastoral Care of many health facilities including MSKCC and UPMC. For large orders DM for bulk rate. Stay well. Chaplain Janice (Radio,TV,Media info @ jiwillett.com)
Activity Feed
US Justice Department’s Spotlight on Hospice Sends ‘Powerful Message’ to Fraudulent Operators
The U.S. Department of Justice (DOJ) is prioritizing hospice as the agency cracks down on health care fraud. Increased reimbursement oversight could be on…
The U.S. Department of Justice (DOJ) is prioritizing hospice as the agency cracks down on health care fraud. Increased reimbursement oversight could be on…
"Hi Michele,
Our HVA members who use our Patient Data Vault (PDV) service implement Tuck-in programs that are very successful. Tuck-in programs are a key element to a successful volunteer program. If you are interested in learning more, I can…"
Our HVA members who use our Patient Data Vault (PDV) service implement Tuck-in programs that are very successful. Tuck-in programs are a key element to a successful volunteer program. If you are interested in learning more, I can…"
The roles of hospice volunteers have morphed during the pandemic in ways that could have lasting impacts on how providers mold care delivery models – including increasing clinical capacity.
Volunteer recruitment and retention has been a challenge…
Source: Hospice News
COVID-19 Public Health Emergency Expires in May 2023
COVID-19 Public Health Emergency to Expire in May, Marking Potential End of Hospice Regulatory Flexibilities
The Biden administration will end the COVID-19 Public Health…
COVID-19 Public Health Emergency Expires in May 2023
COVID-19 Public Health Emergency to Expire in May, Marking Potential End of Hospice Regulatory Flexibilities
The Biden administration will end the COVID-19 Public Health…
Executive Summary
The story of dying in the 21st century is a story of paradox. COVID-19 has meant people have died the ultimate medicalized deaths, often alone in hospitals with little communication with their families. But in other settings,…
The story of dying in the 21st century is a story of paradox. COVID-19 has meant people have died the ultimate medicalized deaths, often alone in hospitals with little communication with their families. But in other settings,…
"Love this! Great idea. I've played the harp for hospice patients for over 20 years.
Greg"
Greg"
We recently published a new Community Outreach Program in Education (COPE) Series on Substack. We are going to share one a week with you here on the Hospice Community Forum.
Click Here to access the first issue. It discusses its value to the…
Click Here to access the first issue. It discusses its value to the…
"Hi Deano,
The situation I encountered is rare. I know what you mean. I had a hospice patient close to my home and I gave them my phone number. They called me when there loved one was actively dying in between my visits and they were uncertain…"
The situation I encountered is rare. I know what you mean. I had a hospice patient close to my home and I gave them my phone number. They called me when there loved one was actively dying in between my visits and they were uncertain…"
"Hi Stacy,
Were you able to get an answer to your question elsewhere? If not, could you be more specific about what specifically your new company's concern is? Generally speaking, the use of staff as volunteers is a Fair Labor Standards Act (“FLSA”)…"
Were you able to get an answer to your question elsewhere? If not, could you be more specific about what specifically your new company's concern is? Generally speaking, the use of staff as volunteers is a Fair Labor Standards Act (“FLSA”)…"
"Dear Deano,
We apologize for the long delay responding to your question. The answer to your question is no, this is not the law. It is just considered best practice for maintaining "good" boundaries with your patients and their families. In my…"
We apologize for the long delay responding to your question. The answer to your question is no, this is not the law. It is just considered best practice for maintaining "good" boundaries with your patients and their families. In my…"
About
When Your Massage Client Has Dementia https://medium.com/@everflowing"
Providing massage for dying persons presents multi level challenges to me as a practitioner. One of these special challenges is working with persons experiencing dementia. One of the blog posts that has been archived earlier is titled The Lost Pause. https://medium.com/@everflowing"…
Check out my new blog page https://medium.com/@everflowing/touch-awareness-beatrice-2c8d46d375c2
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CAREGIVERS STORE
Those who companion suffering daily, such as hospice nurses and volunteers, will surely appreciate this beautiful work. With 62 original art collages by Rashani Réa, five beautiful chapters by Kathy Douglas, and a foreword by Jean Watson, this exquisite book is a peaceful refuge for contemplation, inquiry, reflection and inspiration for those who traverse the joys and sorrows of nursing.
Kathy Douglas, RN, MPH-HA is a nationally recognized nurse leader, filmmaker and entrepreneur.
Rashani Réa is a prolific artist and musician, a creatrice of sanctuaries and a respected spiritual mentor.
“This is a beloved book and beyond a book. It is an evocative, poetic, ecstatic, and inspirited sacred, experiential calling. A calling to you--YES, YOU.”
— Jean Watson, PhD, RN, AHN-BC, FAAN, Living Legend (AAN)
“Those who companion suffering daily need to turn inward to metabolize what they have witnessed. This exquisite book, filled with beautiful images and poetic wise words, is the inspiration and support needed to grow a wise heart.”
— Frank Ostaseski, founder and director of the Metta Institute and author of The Five Invitations: Discovering What Death Can Teach Us About Living Fully
“In this unique time of the COVID-19 pandemic, this book should be considered a tribute to the tremendous courage being displayed by nurses around the world. There is much wisdom conveyed throughout by those who have been there serving others with such grace.”
— Greg Schneider President, HVA, co-author of The Changing Face of Hospice Volunteering in Hospice and Palliative Care
Comments
Thanks for the welcome, Greg! And for all your efforts!!
Thank you for the welcome. I'm looking forward to learning :)
Greg - perhaps a month or so ago, you posted an article that was about a woman in Minnesota I believe? I was having trouble getting onto the site/forum, at that time - but sure would like to read it. Do you remember the article I'm referring to?
Thanks for the greeting Greg!
Yeah I finally had time to get to it, and set up on the forum. There's so much wonderful info here Greg, I could spend hours just reading. Great work you do! Happy New Year!!!!!!
Thank you Greg for the welcome to the group. In July 2009, My Mom had some other health issues going on with bladder infections, constant refills for antibiotics, and had a stroke later after being released from the hospital. They did several tissue biopsies, all came back negative for cancer at that time, but her specialist that performed inserting a stint in her ureter felt for sure that she had bladder cancer. Since then, she has been diagonosed with bladder cancer. For the past 6 months, she has declined significantly, lost a great deal of weight, stopped communicating except for small and infrequent converstaion, but no true communication initiated by herself. Her daily routne disappeared as well. just sleeping more & more each day, and each week. She has been on Hospice since July 2009, and had a live in caretaker to stay with her round the clock. In March, they put her on low dose morphene, with her other medications. Just 2 wks ago, we were all with her but she was not aware of anyone or anything. She was delerious, and incoherent. reachng iinto the air, talking about things we couldn't understand. My brothr had taken her off the morphene 2 days before, thinking it would help her be more alert so she could have her last goodbye with all of us. Then the following week, he placed her in the local nursng home in Whitney, Tx. For the past week she has suddenly started being awake, alert, knows where she is, and likes the nursing home. She is also eating small amounts. This sudden change is difficult to interpret, and now I am having more anxiety that we will have to grieve all over again once her condition declines again. I have mixed emotions about this "rebound" she has had, and not sure I can be prepared for the phone call if she slips back to where she was. It's just very emotional right now.
I wanted to share my new radio program that is now podcast available on itunes for iphones ipods and computers.
Today I had AARP Harry Moody and DR. Whitehouse from Case Western, both important individuals in the world of healthcare and caring - talking on the "empire of Alzhiemers and aging." A great show if I may say so, please support this non commerical programming and spread the word please. Thanks for your assistance.
Zoe
http://www.blogtalkradio.com/hopethroughknowledge
Thanks for the information on volunteers in S.A. Im interested to know more about that! I will absolutely take advantage of Irenes wisdom! I also see a video on the top of your page regarding S. Africa....Im going to go look at it now. Im very happy to find this website! Thanks for starting it!
Ginger
Reaching For Joy
Ken
I will look thru the forums and see what i think
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