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Carol Bradley Bursack left a comment for Carol Bradley Bursack
"Hey, thanks Sam. Good video!
Carol"
Aug 15, 2008
Carol Bradley Bursack left a comment for Carol Bradley Bursack
"Many a family caregiver gets to the point that they don't know how long they can "hang in." They need to find support groups and even get counseling (though finding the time for counseling is hard, too). That's the beauty of online support - you can…"
Jul 13, 2008

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 If any individual or organization needs support books for patients, caregivers, families, staff during this time of crisis, "Dying w/o Crying" and "Affairs of the Heart” are reduced to cost ($5 ) on jiwillett.com. Utilized by Pastoral Care of many health facilities including MSKCC and UPMC. For large orders DM for bulk rate. Stay well. Chaplain Janice  (Radio,TV,Media info @ jiwillett.com)
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When Your Massage Client has Dementia



When Your Massage Client Has Dementia  https://medium.com/@everflowing"


Providing massage for dying persons presents multi level challenges to me as a practitioner. One of these special challenges is working with persons experiencing dementia. One of the blog posts that has been archived earlier is titled The Lost Pause. https://medium.com/@everflowing"…

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  • Hey, thanks Sam. Good video!
    Carol
  • Many a family caregiver gets to the point that they don't know how long they can "hang in." They need to find support groups and even get counseling (though finding the time for counseling is hard, too). That's the beauty of online support - you can do it any time.

    I'll do what I can on this site. I have many obligations, including "official staff moderator" for agingcare.com. So that has to be a priority. But I strongly believe in hospice and want to do what I can. If I can't give enough time to moderate, hopefully we can do it together.
    Carol
  • Hi Carol,

    Welcome to the Forum. I have created a new discussion group titled Family Caregiving. This is an important discussion topic. Family members take on this role and often carry heavy burdens, not knowing that it is equally important to take care of themselves.

    The following is from the attached article, DEPRESSION IN RURAL HOSPICE FAMILY CAREGIVERS:

    "Depression is a common, yet serious condition facing much of our population. According to the National Institute of Mental Health (2001), depression is the leading cause of disability worldwide and is associated with symptoms of sad mood, loss of interest, change in appetite, difficulty sleeping or oversleeping, agitation, loss of energy, feeling of worthlessness, difficulty thinking, and suicide ideations. Due to limited health care resources in rural areas, family caregivers are often ignored, misdiagnosed and mistreated when presenting with signs of depression. With the elderly living longer and an increase in chronic illnesses that coincide with aging, the family is assuming more responsibility for caring for their loved ones. Family members become informal hospice caregivers who are unpaid and not formally trained, often leading to negative outcomes like depression. The lack of diagnosis and treatment of depression can have extreme consequences for rural, family hospice caregivers and the health care industry."

    I encourage you to initiate discussions on topics with others on Family Caregiving through this group. You are the unofficial moderator.

    Thanks for your interest and willingness to moderate.

    Greg

    Depression in Rural Hospice Family Caregivers.pdf
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CAREGIVERS STORE

Just Published!!
by Rashani Rea & Kathy Douglas

Those who companion suffering daily, such as hospice nurses and volunteers, will surely appreciate this beautiful work. With 62 original art collages by Rashani Réa, five beautiful chapters by Kathy Douglas, and a foreword by Jean Watson, this exquisite book is a peaceful refuge for contemplation, inquiry, reflection and inspiration for those who traverse the joys and sorrows of nursing.

Kathy Douglas, RN, MPH-HA is a nationally recognized nurse leader, filmmaker and entrepreneur. 

Rashani Réa is a prolific artist and musician, a creatrice of sanctuaries and a respected spiritual mentor.

“This is a beloved book and beyond a book. It is an evocative, poetic, ecstatic, and inspirited sacred, experiential calling. A calling to you--YES, YOU.” 

— Jean Watson, PhD, RN, AHN-BC, FAAN, Living Legend (AAN)

“Those who companion suffering daily need to turn inward to metabolize what they have witnessed. This exquisite book, filled with beautiful images and poetic wise words, is the inspiration and support needed to grow a wise heart.” 

— Frank Ostaseski, founder and director of the Metta Institute and author of The Five Invitations: Discovering What Death Can Teach Us About Living Fully

“In this unique time of the COVID-19 pandemic, this book should be considered a tribute to the tremendous courage being displayed by nurses around the world. There is much wisdom conveyed throughout by those who have been there serving others with such grace.” 

Greg Schneider President, HVA, co-author of The Changing Face of Hospice Volunteering in Hospice and Palliative Care 

Buy Now