ceremony (1)

A Balance To It All



 I woke up excited. I had the opportunity to facilitate an in service about Touch Awareness in Caregiving to a group of hospice nurses in my favorite hospice.

When I arrived I was told by the Nursing Director that a resident had died the night before. She had been with him all morning as staff and friends had participated in bathing his body and preparing him for his journey from the house.

All staff, including the nurses attending the in service, were asked to participate in the ceremony of departure. The body would be carried out shortly before the in service was scheduled to end, therefore I was asked if I could end a bit earlier than scheduled.

 The door bell rang; it was time to come to the dining room for the ceremony.

Once there we formed two lines and a bowl of rose petals appeared. We passed the bowl around and all took a handful of petals. Then we were told the deceased wanted us to sing Amazing Grace.

While singing, two well dressed men came down the stairs slowly carrying a gurney with the deceased gentleman draped in a shroud, bringing attention to the serenity in his face. It could have been the streets of New Orleans!

As they passed through the dining hall between the two lines  we sang as we sprinkled rose petals on the body.

There I was looking into the face of the deceased, someone I had never known, who didn’t know me, singing, welling up with tears, sprinkling rose petals and realizing that the sacredness of the moment transcended personal relationships.

This was honoring the cycle of life; the human spirit; human suffering and the profound ordinariness of this extraordinary morning.

As the gurney proceeded out the door and through the garden we began to take our places at the table; some with bag lunches and me looking in the fridge for leftovers.

The lunch was somewhat silent for a few minutes. We were digesting food for the soul. Our eye contact and quiet breaths together told the story of the blessed honor we had shared. Then, as if a bell had rung, the talk about the afternoon schedule began.

I finished my lunch and left to go down the street to see a client in another residential care facility.

As I walked outside I was aware of people walking fast; wearing black, and looking at their palms with plugs stuck in their ears. I had to be careful as everyone was in some kind of  personal isolated state, connecting with life through cyberspace. The outside world suddenly felt  empty.

I paused. Remembering the gentle aroma of rose petals, I expressed silent gratitude for my morning in the hospice.

Blessings,

Irene Smith www.everflowing.org


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CAREGIVERS STORE

Recently Published!!
by Maryclaire Torinus

Surviving Hospice: A Chaplain's Journey into the Big Business of Dying Plus: How To Find a Trustworthy Hospice 

This narrative is an insider’s look into the hijacking of hospice by private equity and professional investors and the subsequent harm to patients, their families, and to the interdisciplinary clinical teams. It was released by a NYC publisher on October 31, 2023. For sale on Amazon.

The author, a hospice chaplain, tells end-of-life stories of her patients who were harmed by financially-motivated policies. This is a book for anyone who is embarking on making a choice about a hospice for their loved one, working chaplains, those in training, and those interested in what dying is like with a hospice who places patients as their primary stakeholders.

Maryclaire's experience working for an owner who sold to a private equity firm helped her to realize that the reputation and viability of hospice is in jeopardy. Her goal is to alert all who love hospice to rid it of professional investors.

— Stacy Juba, author, editor, and award-winning health journalist

"Powerful, beautifully written, and eye-opening, this book spotlights the inner workings of a multi-billion-dollar industry and the effect on patients, families, and hospice staff. The author shares poignant accounts of hospice at its best and worst and the hard-hitting truths she learned on her journey. A must-read for family members exploring hospice care."

— Laura Kukowski, CEO, editor, For-Profit Badger Hospice, LLC

"Maryclaire Torinus speaks with authority, providing this essential handbook for choosing a hospice care team and why that selection really matters."

Greg Schneider President, HVA, co-author of The Changing Face of Hospice Volunteering in Hospice and Palliative Care 

"When I first found out that Maryclaire Torinus was writing this book, I immediately contacted her because in my 25+ years supporting hospice volunteers, I have seen a gradual decline in the quality of care volunteers are permitted to provide the dying and their families. There are a variety of reasons for this that I describe in the Foreward of this book. Maryclaire provides invaluable insights that everyone should know, along with solutions to help others make the right choice in choosing a hospice."

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=================

The Changing Face of Volunteering in Hospice and Palliative Care
Contributing Author - Greg Schneider
HCF Creator & HVA President

Volunteers have a long history of supporting the development and delivery of hospice and palliative care in most countries throughout the world. As hospice and palliative care services anticipate significant increasing and changing demands, it is recognized that volunteers have a vital role to play in supporting the future delivery of services. However, as society changes so too does volunteering.

This multi-author text explores the complex phenomenon of hospice and palliative care volunteering from an international perspective and considers the influence on volunteering of different cultures and constructs. The book also explores the likely impact of changes in hospice and palliative care on volunteers and considers how and why volunteering itself is changing and the subsequent implications for managers, organizations, and policy makers.

This book does not attempt to offer solutions to the many challenges ahead, but rather poses questions that may help to reflect on new possibilities and opportunities.

Review

"The book is well laid out and written in an easy to use manner. It begins with setting the scene of volunteering and the modern context of hospice and palliative care. The book is well referenced and covers a range of topics making for a balanced and thought provoking read." -- Nursing Times

"If you run a palliative care volunteer service, or a palliative care service with a volunteer program, you need to read this book. Not only will it give you an in-depth view of where things are at, but also how things are changing in countries from around the world." -- Roger Woodruff, IAHPC Newsletter

 

Editors

Ros ScottHonorary Research Fellow, University of Dundee, UK and Co-chair, EAPC Task Force on Volunteering in Hospice and Palliative Care. She is a researcher and voluntary sector consultant with a background in organisational development, research and the development of volunteering and of palliative care organisations. 

Steven Howlett, Deputy Director at Roehampton Business School, London, UK where he teaches undergraduate and post graduate courses in management and ethics. Previously he was Senior Research Fellow at the Institute for Volunteering research where he completed many studies on volunteering.
 
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