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  • Regulatory - HIPAA Regulatory - HIPAA

    7 Members

    Latest Activity: Mar 9, 2021

    The Health Insurance Portability and Accountability Act of 1996 (HIPAA), applies to protecting health information created or maintained by healthcare organizations. Join this group to discuss HIPAA issues relating to hospice.

  • Prison Hospice Prison Hospice

    6 Members

    Latest Activity: Mar 9, 2021

    Prison Hospice seeks to implement the principles of palliative care in a variety of health care settings in correctional facilities. Restrictions of this environment can present hospice caregivers with difficult barriers to care.

  • Social Workers Social Workers

    5 Members

    Latest Activity: Mar 9, 2021

    Social workers are important change agents in society and in the lives of the individuals, families and communities they serve. If you are a hospice social worker, join our group and use this forum for intellectual exchange with colleagues.

  • Family Caregiving Family Caregiving

    5 Members

    Latest Activity: Mar 9, 2021

    Family Caregivers assume an overwhelming responsibility to care for loved ones dying at home. The implications of such a choice are often unknown. This group is to discuss the challenges of family caregiving and to offer guidance and wisdom.

  • PDV Users Group PDV Users Group

    4 Members

    Latest Activity: Mar 9, 2021

    The PDV Users Group is a venue for sharing information about using HVA's Patient Data Vault (PDV), the tool that is revolutionizing hospice volunteer program management. Share ideas, tips and ask questions.

  • CEO & Executive Directors CEO & Executive Directors

    4 Members

    Latest Activity: Mar 9, 2021

    Dame Cicely Saunders inspired the formation of this group of Chief Executive Officers and Executive Directors, that we might carry on her brilliant work which so greatly benefits the dying and their families.

  • Nursing Nursing

    4 Members

    Latest Activity: Mar 9, 2021

    This group, inspired by Florence Nightingale - the founder of modern nursing, is for nurse practitioners, nurses and certified nursing assistants involved with hospice care.

  • Hannah's Friends Hannah's Friends

    3 Members

    Latest Activity: Mar 9, 2021

    Hannah’s Friends, a HEAL Project volunteer program inspired by the book Hannah’s Gift, serves children with a life-threatening illness and their families. Join us in discussions on how to better serve these families.

  • Pediatric Palliative Care Pediatric Palliative Care

    3 Members

    Latest Activity: Mar 9, 2021

    Pediatrics is a growth sector in hospice care since recent legislation in certain states now allows children with life threatening conditions to receive concurrent curative and palliative care. Join this group to discuss pediatric hospice…

  • Begin the Conversation Begin the Conversation

    2 Members

    Latest Activity: Mar 9, 2021

    People committed to Advance Care Planning and giving loved ones the gift of Beginning the Conversation! Please check out our website and Facebook pages.
  • Elder Care Concerns Elder Care Concerns

    1 Member

    Latest Activity: May 27, 2022

    Elder care and the many associated concerns in supporting our elderly are a growing concern as the number of people requiring care and assistance is rapidly…

  • Patient Data Vault Subscribers Patient Data Vault Subscribers

    1 Member

    Latest Activity: Mar 9, 2021

    This group is a private group for all current Patient Data Vault (PDV) Subscribers.  The group is used to share information about the PDV.

  • Medical Directors Medical Directors

    1 Member

    Latest Activity: Mar 9, 2021

    This group is for medical directors and hospice physicians.

 

CAREGIVERS STORE

Recently Published!!
by Maryclaire Torinus

Surviving Hospice: A Chaplain's Journey into the Big Business of Dying Plus: How To Find a Trustworthy Hospice 

This narrative is an insider’s look into the hijacking of hospice by private equity and professional investors and the subsequent harm to patients, their families, and to the interdisciplinary clinical teams. It was released by a NYC publisher on October 31, 2023. For sale on Amazon.

The author, a hospice chaplain, tells end-of-life stories of her patients who were harmed by financially-motivated policies. This is a book for anyone who is embarking on making a choice about a hospice for their loved one, working chaplains, those in training, and those interested in what dying is like with a hospice who places patients as their primary stakeholders.

Maryclaire's experience working for an owner who sold to a private equity firm helped her to realize that the reputation and viability of hospice is in jeopardy. Her goal is to alert all who love hospice to rid it of professional investors.

— Stacy Juba, author, editor, and award-winning health journalist

"Powerful, beautifully written, and eye-opening, this book spotlights the inner workings of a multi-billion-dollar industry and the effect on patients, families, and hospice staff. The author shares poignant accounts of hospice at its best and worst and the hard-hitting truths she learned on her journey. A must-read for family members exploring hospice care."

— Laura Kukowski, CEO, editor, For-Profit Badger Hospice, LLC

"Maryclaire Torinus speaks with authority, providing this essential handbook for choosing a hospice care team and why that selection really matters."

Greg Schneider President, HVA, co-author of The Changing Face of Hospice Volunteering in Hospice and Palliative Care 

"When I first found out that Maryclaire Torinus was writing this book, I immediately contacted her because in my 25+ years supporting hospice volunteers, I have seen a gradual decline in the quality of care volunteers are permitted to provide the dying and their families. There are a variety of reasons for this that I describe in the Foreward of this book. Maryclaire provides invaluable insights that everyone should know, along with solutions to help others make the right choice in choosing a hospice."

Buy Now