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CAREGIVERS STORE
Surviving Hospice: A Chaplain's Journey into the Big Business of Dying Plus: How To Find a Trustworthy Hospice
This narrative is an insider’s look into the hijacking of hospice by private equity and professional investors and the subsequent harm to patients, their families, and to the interdisciplinary clinical teams. It was released by a NYC publisher on October 31, 2023. For sale on Amazon.
The author, a hospice chaplain, tells end-of-life stories of her patients who were harmed by financially-motivated policies. This is a book for anyone who is embarking on making a choice about a hospice for their loved one, working chaplains, those in training, and those interested in what dying is like with a hospice who places patients as their primary stakeholders.
Maryclaire's experience working for an owner who sold to a private equity firm helped her to realize that the reputation and viability of hospice is in jeopardy. Her goal is to alert all who love hospice to rid it of professional investors.
— Stacy Juba, author, editor, and award-winning health journalist
"Powerful, beautifully written, and eye-opening, this book spotlights the inner workings of a multi-billion-dollar industry and the effect on patients, families, and hospice staff. The author shares poignant accounts of hospice at its best and worst and the hard-hitting truths she learned on her journey. A must-read for family members exploring hospice care."
— Laura Kukowski, CEO, editor, For-Profit Badger Hospice, LLC
"Maryclaire Torinus speaks with authority, providing this essential handbook for choosing a hospice care team and why that selection really matters."
— Greg Schneider President, HVA, co-author of The Changing Face of Hospice Volunteering in Hospice and Palliative Care
"When I first found out that Maryclaire Torinus was writing this book, I immediately contacted her because in my 25+ years supporting hospice volunteers, I have seen a gradual decline in the quality of care volunteers are permitted to provide the dying and their families. There are a variety of reasons for this that I describe in the Foreward of this book. Maryclaire provides invaluable insights that everyone should know, along with solutions to help others make the right choice in choosing a hospice."
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The Changing Face of Volunteering in Hospice and Palliative Care
HCF Creator & HVA President
Volunteers have a long history of supporting the development and delivery of hospice and palliative care in most countries throughout the world. As hospice and palliative care services anticipate significant increasing and changing demands, it is recognized that volunteers have a vital role to play in supporting the future delivery of services. However, as society changes so too does volunteering.
This multi-author text explores the complex phenomenon of hospice and palliative care volunteering from an international perspective and considers the influence on volunteering of different cultures and constructs. The book also explores the likely impact of changes in hospice and palliative care on volunteers and considers how and why volunteering itself is changing and the subsequent implications for managers, organizations, and policy makers.
This book does not attempt to offer solutions to the many challenges ahead, but rather poses questions that may help to reflect on new possibilities and opportunities.
Review
"The book is well laid out and written in an easy to use manner. It begins with setting the scene of volunteering and the modern context of hospice and palliative care. The book is well referenced and covers a range of topics making for a balanced and thought provoking read." -- Nursing Times
"If you run a palliative care volunteer service, or a palliative care service with a volunteer program, you need to read this book. Not only will it give you an in-depth view of where things are at, but also how things are changing in countries from around the world." -- Roger Woodruff, IAHPC Newsletter
Editors
Ros Scott, Honorary Research Fellow, University of Dundee, UK and Co-chair, EAPC Task Force on Volunteering in Hospice and Palliative Care. She is a researcher and voluntary sector consultant with a background in organisational development, research and the development of volunteering and of palliative care organisations.
Steven Howlett, Deputy Director at Roehampton Business School, London, UK where he teaches undergraduate and post graduate courses in management and ethics. Previously he was Senior Research Fellow at the Institute for Volunteering research where he completed many studies on volunteering.
Steven Howlett, Deputy Director at Roehampton Business School, London, UK where he teaches undergraduate and post graduate courses in management and ethics. Previously he was Senior Research Fellow at the Institute for Volunteering research where he completed many studies on volunteering.
Comments
Also, check this HVA post located at this website where I have listed a variety of student activities for students based on their grade levels:
https://hospicevolunteerassociation.ning.com/forum/topics/hospice-se...
Frances
1. Provide students with background information on the elderly, typical hospice illnesses, nursing homes, what to expect, etc. This is a great opportunity for them to become involved in semi-sensory deprivation training. Simulations impairing speech, smell, taste, hearing, walking, talking, eating, touching, etc. help them really experience what patients are going through on a daily basis, and they provide great discussion. You can create these scenarios yourself:
a) Dried corn in their shoes to simulate arthritis
b) Gloves with taped fingers to simulate declining age
c) Smeared goggles to simulate impaired vision
d) Headphones to simulate background noise distractions that interfere with patients’ focus
You can read this post at my blog to get an idea of how this can be done and adapt it to your own young people.
http://hospiceandnursinghomes.blogspot.com/2009/02/caregiving-with-...
2. Add a research component to your project. I have a chapter on this in my book. At a very early stage of our intergenerational projects, we had students brainstorm about what they thought about old people and what they thought their experiences with them would be like. We made a list that became a research survey. Of course, they came up with the typical stereotypes: Old people are grouchy, nosey, hard to talk to, smelly, etc. We took survey percentages of how students felt about their opinions. This is an example:
Old people are grouchy. Yes % No %
After students completed the service project, they were given these same surveys to complete again. It was amazing how their opinions about the elderly had changed. In addition to their written and oral reflections (very important) about their service experiences, the survey results provided concrete researched evidence that students were positively changed. Students also learned more about research.
3. Be sure to emphasize that service is a win-win exchange, so students don't develop an attitude that they are doing all the giving and "saving" people. Also, be sure to provide adequate supervision at the site.
4. The most important factor is to make sure you meet with the service recipients and discuss and agree on what their needs are and how your group can meet them. It's surprising how many people assume they know what others need.
You are off to having a fantastic 2010! Have wonderful service experiences!
Frances Shani Parker, Author
"Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes”
“Hospice and Nursing Homes Blog”
You should check out HVA's National Hospice Document Repository (NHDR). If you go to the Document Index, there are traing tools for teens that may be helpful. More info on the NHDR is below.
Resources for Hospice Volunteer Managers
Greg Schneider
HVA President