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CAREGIVERS STORE
Surviving Hospice: A Chaplain's Journey into the Big Business of Dying Plus: How To Find a Trustworthy Hospice
This narrative is an insider’s look into the hijacking of hospice by private equity and professional investors and the subsequent harm to patients, their families, and to the interdisciplinary clinical teams. It was released by a NYC publisher on October 31, 2023. For sale on Amazon.
The author, a hospice chaplain, tells end-of-life stories of her patients who were harmed by financially-motivated policies. This is a book for anyone who is embarking on making a choice about a hospice for their loved one, working chaplains, those in training, and those interested in what dying is like with a hospice who places patients as their primary stakeholders.
Maryclaire's experience working for an owner who sold to a private equity firm helped her to realize that the reputation and viability of hospice is in jeopardy. Her goal is to alert all who love hospice to rid it of professional investors.
— Stacy Juba, author, editor, and award-winning health journalist
"Powerful, beautifully written, and eye-opening, this book spotlights the inner workings of a multi-billion-dollar industry and the effect on patients, families, and hospice staff. The author shares poignant accounts of hospice at its best and worst and the hard-hitting truths she learned on her journey. A must-read for family members exploring hospice care."
— Laura Kukowski, CEO, editor, For-Profit Badger Hospice, LLC
"Maryclaire Torinus speaks with authority, providing this essential handbook for choosing a hospice care team and why that selection really matters."
— Greg Schneider President, HVA, co-author of The Changing Face of Hospice Volunteering in Hospice and Palliative Care
"When I first found out that Maryclaire Torinus was writing this book, I immediately contacted her because in my 25+ years supporting hospice volunteers, I have seen a gradual decline in the quality of care volunteers are permitted to provide the dying and their families. There are a variety of reasons for this that I describe in the Foreward of this book. Maryclaire provides invaluable insights that everyone should know, along with solutions to help others make the right choice in choosing a hospice."
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The Changing Face of Volunteering in Hospice and Palliative Care
HCF Creator & HVA President
Volunteers have a long history of supporting the development and delivery of hospice and palliative care in most countries throughout the world. As hospice and palliative care services anticipate significant increasing and changing demands, it is recognized that volunteers have a vital role to play in supporting the future delivery of services. However, as society changes so too does volunteering.
This multi-author text explores the complex phenomenon of hospice and palliative care volunteering from an international perspective and considers the influence on volunteering of different cultures and constructs. The book also explores the likely impact of changes in hospice and palliative care on volunteers and considers how and why volunteering itself is changing and the subsequent implications for managers, organizations, and policy makers.
This book does not attempt to offer solutions to the many challenges ahead, but rather poses questions that may help to reflect on new possibilities and opportunities.
Review
"The book is well laid out and written in an easy to use manner. It begins with setting the scene of volunteering and the modern context of hospice and palliative care. The book is well referenced and covers a range of topics making for a balanced and thought provoking read." -- Nursing Times
"If you run a palliative care volunteer service, or a palliative care service with a volunteer program, you need to read this book. Not only will it give you an in-depth view of where things are at, but also how things are changing in countries from around the world." -- Roger Woodruff, IAHPC Newsletter
Editors
Ros Scott, Honorary Research Fellow, University of Dundee, UK and Co-chair, EAPC Task Force on Volunteering in Hospice and Palliative Care. She is a researcher and voluntary sector consultant with a background in organisational development, research and the development of volunteering and of palliative care organisations.
Steven Howlett, Deputy Director at Roehampton Business School, London, UK where he teaches undergraduate and post graduate courses in management and ethics. Previously he was Senior Research Fellow at the Institute for Volunteering research where he completed many studies on volunteering.
Steven Howlett, Deputy Director at Roehampton Business School, London, UK where he teaches undergraduate and post graduate courses in management and ethics. Previously he was Senior Research Fellow at the Institute for Volunteering research where he completed many studies on volunteering.
Comments
thanks again for the information
Jennifer Thompson, CVA
I am a member of this community because it is full of great information and I want to remain alert to the concerns of the volunteer community. I sincerely hope I am able to make contributions that are considered valuable. In that regard, I would like to offer to you the opportunity to take the online training at no cost to you and you will receive a certificate for 4 contact hours at the completion of the course. If interested, go to http://www.volunteertrainingonline.com/courses and register but do not pay. Send me an email letting me know that you have registered and I will assign you to the course manually to work around the payment request.
No strings, just want to offer assistance. I had many people take the course in 2009 and by the end of the year the number of agencies using this training had significantly increased. Once they realized they could get a free web site and only $10 per volunteer it was a no brainer.
Robin Watts
Jennifer
HVA's referral service has not been implemented as advertised last summer. Due to lack of resources from current economic climate, we have not been able to complete the automated referral service that will automatically send you e-mails with potential referrals.
The current economic climate has apparently significantly reduced the number of people making inquiries about becoming volunteers. We typically get numerous inquiries from all over the country but in 2009 they were few and far between. A sign of these difficult times.
We do hope to get the automated referral service implemented before this summer. In the meantime, when we do get inquiries from individuals wanting to become volunteers, we direct them to our HVA member hospices first.
Also, please note that the Hospice Volunteer Training Online group in the Hospice Community Forum is not affiliated with HVA. We have been in the process of developing a national training program in conjunction with experts in hospice and the field of death and dying for the last couple of years. Again, resource availability has constrained us. Our National Council on Hospice Volunteer Education is establishing national training standards and certification levels that are in a review process.
We hope that 2010 is going to loosen the economy up a bit and allow us to make further progress in these areas.
Greg Schneider
HCF Creator
HVA Founder and President