A Hospice Angel

It seemed as usual, walking down the long corridor in the inpatient hospice unit on Sunday.We were witnessing twenty-two beds with curtains in between to allow visual privacy to residents in various stages of their dying process. Curtains were drawn to allow complete privacy for some; others, with curtains open, were watching TV or listening to music with headsets, and some were lying across their beds in obvious discomfort. There were residents being vocal with their personal needs, and residents needing their quiet space.After 15 years of coming to this unit, although I never know what will appear, it all seemed to be somewhat familiar.I knew however, that for the two Everflowing interns with me, it was not familiar. I was giving an orientation for our clinical practice and this was our first walk through the unit. I sensed the impact of this long corridor.We were passing through the men’s area when at the other end of the unit, in the women’s area, there was a slight Asian woman coming our way with a nursing assistant. We kept walking. She kept walking towards us. As the woman approached I noticed her expression change from curiosity to acceptance.Then, when we were only a couple of feet away from each other, the woman stretched out her arms to me. Her face was open and inviting. I stopped walking. Our eyes met in soft recognition of our humanness, and I responded with outstretched arms as well.With obvious respect, she took one of my arms in her hands, stroked down the arm slowly, and looking into my eyes, took my hand and gently stroked the side of her face. ”Thank you,” I said. “Thank you,” she replied.Reaching out, she then silently offered to hold one of the intern’s hands for a moment, and thank you’s were expressed.Approaching the second intern, the woman stood on her tiptoes and stroked the interns shoulder and across his chest. She was beaming with care and tenderness.After all thank you’s were expressed this angel of the hospice continued her journey to the kitchen.We were left standing in the center of this corridor softened with gratitude. Our orientation had been transformed. Our hearts were full and our spirits light.A simple caring gesture of touch; a glance into the eyes of an intimate contact with no attachment; no planned intention to fix, change, heal or correct anything, had changed everything.Thank you for your personal sharing and comments. I look forward to hearing from you.Blessings Irene smithwww.everflowing.org
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CAREGIVERS STORE

Recently Published!!
by Maryclaire Torinus

Surviving Hospice: A Chaplain's Journey into the Big Business of Dying Plus: How To Find a Trustworthy Hospice 

This narrative is an insider’s look into the hijacking of hospice by private equity and professional investors and the subsequent harm to patients, their families, and to the interdisciplinary clinical teams. It was released by a NYC publisher on October 31, 2023. For sale on Amazon.

The author, a hospice chaplain, tells end-of-life stories of her patients who were harmed by financially-motivated policies. This is a book for anyone who is embarking on making a choice about a hospice for their loved one, working chaplains, those in training, and those interested in what dying is like with a hospice who places patients as their primary stakeholders.

Maryclaire's experience working for an owner who sold to a private equity firm helped her to realize that the reputation and viability of hospice is in jeopardy. Her goal is to alert all who love hospice to rid it of professional investors.

— Stacy Juba, author, editor, and award-winning health journalist

"Powerful, beautifully written, and eye-opening, this book spotlights the inner workings of a multi-billion-dollar industry and the effect on patients, families, and hospice staff. The author shares poignant accounts of hospice at its best and worst and the hard-hitting truths she learned on her journey. A must-read for family members exploring hospice care."

— Laura Kukowski, CEO, editor, For-Profit Badger Hospice, LLC

"Maryclaire Torinus speaks with authority, providing this essential handbook for choosing a hospice care team and why that selection really matters."

Greg Schneider President, HVA, co-author of The Changing Face of Hospice Volunteering in Hospice and Palliative Care 

"When I first found out that Maryclaire Torinus was writing this book, I immediately contacted her because in my 25+ years supporting hospice volunteers, I have seen a gradual decline in the quality of care volunteers are permitted to provide the dying and their families. There are a variety of reasons for this that I describe in the Foreward of this book. Maryclaire provides invaluable insights that everyone should know, along with solutions to help others make the right choice in choosing a hospice."

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The Changing Face of Volunteering in Hospice and Palliative Care
Contributing Author - Greg Schneider
HCF Creator & HVA President

Volunteers have a long history of supporting the development and delivery of hospice and palliative care in most countries throughout the world. As hospice and palliative care services anticipate significant increasing and changing demands, it is recognized that volunteers have a vital role to play in supporting the future delivery of services. However, as society changes so too does volunteering.

This multi-author text explores the complex phenomenon of hospice and palliative care volunteering from an international perspective and considers the influence on volunteering of different cultures and constructs. The book also explores the likely impact of changes in hospice and palliative care on volunteers and considers how and why volunteering itself is changing and the subsequent implications for managers, organizations, and policy makers.

This book does not attempt to offer solutions to the many challenges ahead, but rather poses questions that may help to reflect on new possibilities and opportunities.

Review

"The book is well laid out and written in an easy to use manner. It begins with setting the scene of volunteering and the modern context of hospice and palliative care. The book is well referenced and covers a range of topics making for a balanced and thought provoking read." -- Nursing Times

"If you run a palliative care volunteer service, or a palliative care service with a volunteer program, you need to read this book. Not only will it give you an in-depth view of where things are at, but also how things are changing in countries from around the world." -- Roger Woodruff, IAHPC Newsletter

 

Editors

Ros ScottHonorary Research Fellow, University of Dundee, UK and Co-chair, EAPC Task Force on Volunteering in Hospice and Palliative Care. She is a researcher and voluntary sector consultant with a background in organisational development, research and the development of volunteering and of palliative care organisations. 

Steven Howlett, Deputy Director at Roehampton Business School, London, UK where he teaches undergraduate and post graduate courses in management and ethics. Previously he was Senior Research Fellow at the Institute for Volunteering research where he completed many studies on volunteering.
 
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