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CAREGIVERS STORE
Surviving Hospice: A Chaplain's Journey into the Big Business of Dying Plus: How To Find a Trustworthy Hospice
This narrative is an insider’s look into the hijacking of hospice by private equity and professional investors and the subsequent harm to patients, their families, and to the interdisciplinary clinical teams. It was released by a NYC publisher on October 31, 2023. For sale on Amazon.
The author, a hospice chaplain, tells end-of-life stories of her patients who were harmed by financially-motivated policies. This is a book for anyone who is embarking on making a choice about a hospice for their loved one, working chaplains, those in training, and those interested in what dying is like with a hospice who places patients as their primary stakeholders.
Maryclaire's experience working for an owner who sold to a private equity firm helped her to realize that the reputation and viability of hospice is in jeopardy. Her goal is to alert all who love hospice to rid it of professional investors.
— Stacy Juba, author, editor, and award-winning health journalist
"Powerful, beautifully written, and eye-opening, this book spotlights the inner workings of a multi-billion-dollar industry and the effect on patients, families, and hospice staff. The author shares poignant accounts of hospice at its best and worst and the hard-hitting truths she learned on her journey. A must-read for family members exploring hospice care."
— Laura Kukowski, CEO, editor, For-Profit Badger Hospice, LLC
"Maryclaire Torinus speaks with authority, providing this essential handbook for choosing a hospice care team and why that selection really matters."
— Greg Schneider President, HVA, co-author of The Changing Face of Hospice Volunteering in Hospice and Palliative Care
"When I first found out that Maryclaire Torinus was writing this book, I immediately contacted her because in my 25+ years supporting hospice volunteers, I have seen a gradual decline in the quality of care volunteers are permitted to provide the dying and their families. There are a variety of reasons for this that I describe in the Foreward of this book. Maryclaire provides invaluable insights that everyone should know, along with solutions to help others make the right choice in choosing a hospice."
Replies
The Hospice Volunteer Training Institute (HVTI) has been in the works for a while and I believe it will come to fruition in the next year. HVA is establishing national volunteer certification and training standards through our National Council on Hospice Volunteer Education. We will be focusing on the issue of cultural diversity and offering programs that will bring an increasing awareness to this very important issue.
Greg Schneider
President, HVA
HCF Creator
About five months ago, I started a discussion titled "Share What Your Hospice is Doing to Promote Cultural Diversity." I had hoped that of the hospices represented at this website, some would welcome the opportunity to share their best practices promoting cultural diversity, while receiving more public recognition for their commendable efforts. I also offered to showcase respondents on my blog (“Hospice and Nursing Homes Blog”), which is read by many in both the hospice and nursing home arenas. Only one hospice worker at this website responded: Julie Cranz (Hospice Volunteer Coordinator at Hospice of Western Kentucky). Monica Escalante (VP of Volunteers, Community Education and Outreach, Montgomery Hospice) emailed me on her own about activities of her hospice organization.
Taking this project to the next level, I showcased these two hospices on my blog four months ago. I concluded that blog post with the question “What is your hospice organization doing to promote cultural diversity? Please comment below.” This opportunity for hospices to share their best cultural diversity practices with one another and the public has received no responses. What is interesting about this is that for several weeks, this post received numerous visitors out of the hundreds the blog receives weekly. A sizable number (tracked) were from hospice organizations, but none left comments. Readers can draw their own conclusions. Responses at the blog or this website are still welcome.
I’ll conclude by saying that promoting cultural diversity requires sincere commitment and a proactive stance in modeling and encouraging others to embrace what hospice organizations say is important to be effective and sensitive to all people. More specifically, this proactivity requires, among other efforts, hiring culturally diverse staff members at various levels, more input from culturally diverse communities about what their needs really are, and more hospice recruitment in these communities at churches, schools, recreation centers, events, etc., along with media, particularly in their languages when necessary. Hospice workers must take more proactive outreach roles in presenting the good work hospice does and the benefits it provides, while helping all recipients of their services feel appreciated and respected.
Frances Shani Parker
Diversity is another issue -- gender is one consideration but I would like to see more cultural diversity. This is one of HVA's mission objectives, to create more opportunities for greater cultural participation in hospice volunteering.
Thanks for posting this data...maybe we will encourgage more men out there to join us!!
Greg