You need to be a member of Hospice Community Forum to add comments!
CAREGIVERS STORE
Surviving Hospice: A Chaplain's Journey into the Big Business of Dying Plus: How To Find a Trustworthy Hospice
This narrative is an insider’s look into the hijacking of hospice by private equity and professional investors and the subsequent harm to patients, their families, and to the interdisciplinary clinical teams. It was released by a NYC publisher on October 31, 2023. For sale on Amazon.
The author, a hospice chaplain, tells end-of-life stories of her patients who were harmed by financially-motivated policies. This is a book for anyone who is embarking on making a choice about a hospice for their loved one, working chaplains, those in training, and those interested in what dying is like with a hospice who places patients as their primary stakeholders.
Maryclaire's experience working for an owner who sold to a private equity firm helped her to realize that the reputation and viability of hospice is in jeopardy. Her goal is to alert all who love hospice to rid it of professional investors.
— Stacy Juba, author, editor, and award-winning health journalist
"Powerful, beautifully written, and eye-opening, this book spotlights the inner workings of a multi-billion-dollar industry and the effect on patients, families, and hospice staff. The author shares poignant accounts of hospice at its best and worst and the hard-hitting truths she learned on her journey. A must-read for family members exploring hospice care."
— Laura Kukowski, CEO, editor, For-Profit Badger Hospice, LLC
"Maryclaire Torinus speaks with authority, providing this essential handbook for choosing a hospice care team and why that selection really matters."
— Greg Schneider President, HVA, co-author of The Changing Face of Hospice Volunteering in Hospice and Palliative Care
"When I first found out that Maryclaire Torinus was writing this book, I immediately contacted her because in my 25+ years supporting hospice volunteers, I have seen a gradual decline in the quality of care volunteers are permitted to provide the dying and their families. There are a variety of reasons for this that I describe in the Foreward of this book. Maryclaire provides invaluable insights that everyone should know, along with solutions to help others make the right choice in choosing a hospice."
Replies
When I have a volunteer that has spent several months with a patient I always ask the volunteer if they need some time off to process. I encourage the volunteer to attend the memorial service and say goodbye to the family. I also explain if they want to keep in contact with the family for any reason that this needs to be discussed with our bereavement coordinator. The family needs to move and and so does our volunteer.
Volunteer programs that have monthly or bi-monthly volunteer support meetings that permit volunteers to come together as a community to periodically share their stories will find that most of their volunteers will be able to move on to a new patient without delay. It is very important that these volunteer meetings are facilitated by the volunteer coordinator and experienced volunteer mentors. This will allow the volunteer coordinator to know ahead of time whether a certain volunteer is likely to be affected by the loss of their patient.
While support meetings are very useful in this regard, there may be situations where the loss affects a new volunteer unexpectedly. There may be circumstances associated with the death, the experience the volunteer had with the family or the volunteer's own life experience that will make them more susceptible to the loss. In those cases, staff intervention may be required or the volunteer can take time off.
The volunteer coordinator should offer to discuss the patient's death with the volunteer after he or she has had time to reflect on the loss. This discussion will be useful in assessing where the volunteer is in their grieving process.
In most cases, the volunteer should be the one to make the decision as to when they are ready for the next assignment and therefore it is not necessary to purposefully establish a time duration between patients for your volunteers.
There are a lot of variables.
I think it depends on the amount of time the volunteer has been with the patient (days vs years). The volunteer has the option to refuse to do more patient care for awhile but it would be great if they could talk to your bereavement coordinator following the death to help identify any issues.