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CAREGIVERS STORE
Surviving Hospice: A Chaplain's Journey into the Big Business of Dying Plus: How To Find a Trustworthy Hospice
This narrative is an insider’s look into the hijacking of hospice by private equity and professional investors and the subsequent harm to patients, their families, and to the interdisciplinary clinical teams. It was released by a NYC publisher on October 31, 2023. For sale on Amazon.
The author, a hospice chaplain, tells end-of-life stories of her patients who were harmed by financially-motivated policies. This is a book for anyone who is embarking on making a choice about a hospice for their loved one, working chaplains, those in training, and those interested in what dying is like with a hospice who places patients as their primary stakeholders.
Maryclaire's experience working for an owner who sold to a private equity firm helped her to realize that the reputation and viability of hospice is in jeopardy. Her goal is to alert all who love hospice to rid it of professional investors.
— Stacy Juba, author, editor, and award-winning health journalist
"Powerful, beautifully written, and eye-opening, this book spotlights the inner workings of a multi-billion-dollar industry and the effect on patients, families, and hospice staff. The author shares poignant accounts of hospice at its best and worst and the hard-hitting truths she learned on her journey. A must-read for family members exploring hospice care."
— Laura Kukowski, CEO, editor, For-Profit Badger Hospice, LLC
"Maryclaire Torinus speaks with authority, providing this essential handbook for choosing a hospice care team and why that selection really matters."
— Greg Schneider President, HVA, co-author of The Changing Face of Hospice Volunteering in Hospice and Palliative Care
"When I first found out that Maryclaire Torinus was writing this book, I immediately contacted her because in my 25+ years supporting hospice volunteers, I have seen a gradual decline in the quality of care volunteers are permitted to provide the dying and their families. There are a variety of reasons for this that I describe in the Foreward of this book. Maryclaire provides invaluable insights that everyone should know, along with solutions to help others make the right choice in choosing a hospice."
Replies
The responsibility for changing the distrust many people of color have toward the healthcare system lies with the system that created it. More cultural diversity programs to educate healthcare workers must be implemented. All healthcare workers must take proactive outreach roles in presenting the benefits they provide, while making recipients of their services feel welcomed and respected. Promoting cultural diversity requires a sincere commitment to hire more people of color at all staff levels, more input from people of color on what their needs really are, and more hospice recruitment in their communities at churches, schools, recreation centers, events, etc., along with media, particularly in their languages. This is not only a healthcare issue; it is a moral one.
Overwhelming evidence continues to indicate that ongoing healthcare disparities negatively affect certain racial and ethnic groups.
There is a tendency among some healthcare workers to assume that the solution to this problem rests with leaders of the “institution” when, in fact, it belongs to each person making up the institution. The question "Does Your Patient's Race Affect the Care That You Deliver?" is one that every healthcare worker must explore at a personal level with honesty. I encourage more people to view the video (also at this site) "Does Your Patient's Race Affect the Care That You Deliver?" for personal introspection and conversations on this important topic.
I would be interested in knowing what other hospices are doing to promote cultural diversity. More of this kind of sharing is needed.
Frances Shani Parker, Author who includes the often-missing voices of people of color in hospice care
"Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes”