Hospice does not speed up death. If two terminally ill patients had identical issues, the one in hospice care would probably live longer. During my years of hospice volunteering in Detroit, Michigan nursing homes, I rarely had patients leave hospice alive.

Who leaves hospice alive? Discharges can occur when patients decide to resume curative care, when their conditions improve beyond hospice guidelines, or when hospices inappropriately use live discharge to avoid costly hospitalizations. A national study of live discharges from hospice stated that approximately 1 in 5 hospice patients is discharged alive with variation by hospice programs and by geographic regions. Connecticut has the lowest rate, and Mississippi has the highest. Not-for-profit hospices and older hospices have lower rates of live discharge.

From the perspectives of patients and family members, what are the experiences of adults discharged from hospice programs due to decertification related to ineligibility or extended prognosis? 
View the link below to learn what the research says and read about Raynell who left hospice with Alzheimer's and diabetes:

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CAREGIVERS STORE

by Rashani Rea & Kathy Douglas

Those who companion suffering daily, such as hospice nurses and volunteers, will surely appreciate this beautiful work. With 62 original art collages by Rashani Réa, five beautiful chapters by Kathy Douglas, and a foreword by Jean Watson, this exquisite book is a peaceful refuge for contemplation, inquiry, reflection and inspiration for those who traverse the joys and sorrows of nursing.

Kathy Douglas, RN, MPH-HA is a nationally recognized nurse leader, filmmaker and entrepreneur. 

Rashani Réa is a prolific artist and musician, a creatrice of sanctuaries and a respected spiritual mentor.

“This is a beloved book and beyond a book. It is an evocative, poetic, ecstatic, and inspirited sacred, experiential calling. A calling to you--YES, YOU.” 

— Jean Watson, PhD, RN, AHN-BC, FAAN, Living Legend (AAN)

“Those who companion suffering daily need to turn inward to metabolize what they have witnessed. This exquisite book, filled with beautiful images and poetic wise words, is the inspiration and support needed to grow a wise heart.” 

— Frank Ostaseski, founder and director of the Metta Institute and author of The Five Invitations: Discovering What Death Can Teach Us About Living Fully

“In this unique time of the COVID-19 pandemic, this book should be considered a tribute to the tremendous courage being displayed by nurses around the world. There is much wisdom conveyed throughout by those who have been there serving others with such grace.” 

Greg Schneider President, HVA, co-author of The Changing Face of Hospice Volunteering in Hospice and Palliative Care 

Buy Now