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CAREGIVERS STORE
by Rashani Rea & Kathy Douglas
Those who companion suffering daily, such as hospice nurses and volunteers, will surely appreciate this beautiful work. With 62 original art collages by Rashani Réa, five beautiful chapters by Kathy Douglas, and a foreword by Jean Watson, this exquisite book is a peaceful refuge for contemplation, inquiry, reflection and inspiration for those who traverse the joys and sorrows of nursing.
Kathy Douglas, RN, MPH-HA is a nationally recognized nurse leader, filmmaker and entrepreneur.
Rashani Réa is a prolific artist and musician, a creatrice of sanctuaries and a respected spiritual mentor.
“This is a beloved book and beyond a book. It is an evocative, poetic, ecstatic, and inspirited sacred, experiential calling. A calling to you--YES, YOU.”
— Jean Watson, PhD, RN, AHN-BC, FAAN, Living Legend (AAN)
“Those who companion suffering daily need to turn inward to metabolize what they have witnessed. This exquisite book, filled with beautiful images and poetic wise words, is the inspiration and support needed to grow a wise heart.”
— Frank Ostaseski, founder and director of the Metta Institute and author of The Five Invitations: Discovering What Death Can Teach Us About Living Fully
“In this unique time of the COVID-19 pandemic, this book should be considered a tribute to the tremendous courage being displayed by nurses around the world. There is much wisdom conveyed throughout by those who have been there serving others with such grace.”
— Greg Schneider President, HVA, co-author of The Changing Face of Hospice Volunteering in Hospice and Palliative Care
Replies
I have been reading Dr. Stan Goldberg's new book Lessons for the Living - Stories of Forgiveness, Gratitude and Cour... and it has prompted me to think more seriously about what you are discussing here. Dr. Goldberg's book discusses, among other things, some of his experiences at the Zen Hospice Project as a volunteer. I started my journey as a hospice volunteer there at the Guest House, an old Victorian home with much charm, that became the exit portal from this life for many hospice patients over the last couple of decades.
A chapter in the book titled "Faces of Compassion" so poignantly reminded me of how patients and volunteers are transformed by compassionate interaction. By necessity some of the trends in hospice care, as it moves further into the medical mainstream, are resulting in a less intimate experience for patients and volunteers. Liability concerns are causing some organizations to really restrict what a volunteer may do to/with a patient. This is unfortunate in my opinion.
At Zen Hospice we saw patients come into the hospice bitter and disillusioned by life and perhaps care they received prior to coming to hospice. After experiencing the intimate environment and the compassionate care provided by so many volunteers who served at the Guest House, many patients were transformed and the result was a fulfilling and peaceful death.
I believe that there are patients, caregivers and volunteers who would prefer to have an environment where they could participate in an "Assisted Conscious Transition", as you have described it.
Hospice has grown sufficiently in size that there is now this macrocosm of hospice care that varies considerably, just like there is a macrocosm of healthcare, of which hospice is considered a jewel. I believe their is an opportunity for the creation of an "alternative" hospice microcosm that could become the jewel of the broader hospice macrocosm for those who would like to die in an environment where those around them strive to create a conscious transition -- whatever that means to the patient. I believe there are many hospice workers who remember the period when hospice was a volunteer effort by all disciplines. They would likely encourage such an environment and participate in the care.
Greg Schneider
HCF Creator
President, Hospice Volunteer Association